Parkinson's Swindon and District

 

Recent news

 

Information Sessions For Those Living With A Person With Parkinson’s

Swindon’s Parkinson’s Services are holding sessions aimed at people who live
with or support people with Parkinson’s. These sessions are detailed here.

 

Anniversary Event for the Swindon & District Branch

The 30th March 2018 will mark the 40th Anniversary of the inauguration of our Branch. We welcome any suggestions from our Branch members on how we should celebrate this milestone.

 

Dave Logan

Branch Chair

 

Royal Society of St George Wiltshire Branch

Thank you to Branch Member Pat Wallington who is secretary of Royal Society of St George Wiltshire Branch. Pat kindly persuaded the Society to name the Swindon & District Branch of Parkinson’s UK as their Charity for 2018.

 

Dave Logan

Branch Chair

 

Please Support Hop, Skip & Jump Swindon’s Project

An Outdoor Seated & Recreational Area

Tesco were delighted to let Hop, Skip & Jump (HSJ) know that their application to the Tesco Bags of Help Grant Scheme has been successful and their project will be put forward to a customer vote in Tesco stores during May and June 2017.

 

Their project along with the other two successful projects in your region will go forward to a vote in Tesco stores where their customers will decide the outcome by voting for their favourite project each time they shop. Voting will take during May and June we will notify you by the end of July 2017 confirming the amount of funding you will receive. The project with the highest number of votes across your region will receive up to £4,000, the second placed project up to £2,000 and the third placed project £1,000. The Branch supported HSJ’s Grant Application as this project will also benefit our own members so please do vote.

 

HSJ provide our Respite Service and we hope in the near future to extend the hours available on Thursdays, when up to 4 hours respite can be booked to 9am - 2.45pm, rather than 1pm previously. This will make it easier for the carer to get the person being cared for up and ready to go there. Don’t forget that transport can now also be booked from HSJ.

 

To use our Respite Service, contact Keith Cooper, our Branch Welfare Officer on 01793 871848 who will send you the necessary forms to register with HSJ.

 

Dave Logan

Branch Chair

 

LIFT Course "Living Well with Parkinson's" May - June 2017

This free 4-week course is for people who have a diagnosis of Parkinson’s Disease.

Full details and application form here

 

Parkinson's Awareness Week 2017

Full schedule for Swindon and District here

 

Swindon Therapy Centre Services

The following services are available at the Swindon Therapy Centre for MS and Other Neurological Conditions during April.

 

April Diary Dates

Citizens Advice, 10:00am – 12:00pm on the following dates:

Thursday, 6th April

Wednesday, 12th April

Thursday, 20th April

Thursday, 27th April

 

If you would like an appointment please see the Support Workers or telephone 01793 481700 to book a slot.

 

Swindon Carers will be in the centre, 10:00am – 1:00pm on the following dates:

Monday, 3rd April

Wednesday, 12th April

Thursday, 20th April

Wednesday, 26th April

 

Rupinder will be in the Centre from 9:30am – 12:30pm on the following dates for Threading, Nails and other Beauty Treatments:

Wednesday, 5th April

Monday, 10th April

Thursday, 20th April

Friday, 28th April

 

Midweek Socialites – Thursday, 6th April - 19:00pm until 20:30pm

This is an evening social group for people with MS and other neurological conditions. This is a great group, especially if you are unavailable in the day. Please come and meet us and make some new friends who can understand the challenges you may face. We meet at the centre. We look forward to seeing you.

 

Foot Specialist Visit – Monday, 8th May

Alan will be in from 10:30am – 12:30pm on this day. If you would like to book an appointment please sign up in the members area or telephone 01793 481700 to book.

 

The address is.

Swindon Therapy Centre

Bradbury House, Westmead Drive, Swindon, SN5 7YS

 

Dance for Parkinson's with Swindon Dance

Dance for Parkinson’s is being added to our Exercise Programme starting Friday 28th April. Following an initial 3 month trial, should sufficient numbers continue to support this new venture, it will continue on a permanent basis providing funds remain available.

Details here

 

Carer Support - Respite Programme Enhancement

The Parkinson’s Swindon & District Branch “Thursday Parkinson’s Respite” to help support carers of people affected by Parkinson’s that started in February is being enhanced and improved. Details here

 

Living Well with Parkinson’s

This free 4-week course is for people who have a diagnosis of Parkinson’s Disease. The next course is Fri 27 January. However if you would like to attend a future one, please apply as per the flyer here.

 

Dance for Neurology

Following on from the talk by Swindon Dance on Friday 13 January Helen Ganberg has requested we send out the links below.

 

Helen has spoken to their specialist teacher Sarah Fletcher who has been trained in Dance for Parkinson’s and she has said that some other centres do include those with other neurological conditions such as MS.

 

As was explained at the meeting the process involves seated moving, stood supported moving and then if possible moving away from the chair. It was also very well demonstrated at the meeting with over 50 people joining seat dance movements to music and all seemingly enjoying the experience.

 

The scheme originally started in this country at English National Ballet but our teacher Sarah uses a range of dance styles- not Ballet.

 

Here are some links to Dance for Parkinson's websites and articles:

 

http://www.ballet.org.uk/learning/dance-parkinsons/

http://danceforparkinsons.org/

http://www.communitydance.org.uk/DisplaySingle.aspx?iid=866&dbview=867&dbrow=41077

http://www.danceforparkinsonsuk.org/

https://www.youtube.com/watch?v=0UqtB6QU4AY

https://www.youtube.com/watch?v=ovbiV5yb2sg

 

I hope these will give you more of an idea of why and what is involved.

With best wishes

Helen

 

Healthwatch Swindon Invitation

An invitation to work with Healthwatch Swindon to influence health and social care services.

Details here

 

Swindon & District Branch Carer Support

Following a success Grant Application from the Wiltshire Community Foundation to finance the first two years of Carer Support, the Swindon & District Branch is pleased to announce the launching of a Respite Programme to help support our Carers. This grant is specific for and allows us to fund 300 hours of respite per annum. If successful and funds or grants permit we hope to add to the yearly total of funded hours. Details here

 

LIFT Psychology in Swindon

The courses that are offered by LIFT to people with a GPs in Swindon. Some of the courses have already started but others have yet to commence.

Courses Brochure (October – December 2016)

 

Making a Life History Book

Info that the SLT team use with patients whose memory is starting to deteriorate. These books help them to recall important events in their lives and are a source of enjoyment and discussion for all. Details here

 

Patient & Carer Questionnaire

Rachel our Lead Parkinson’s Disease Specialist Nurse has requested that if you receive a patient or carer questionnaire, can please fill it out and return it in the stamp addressed envelope provided.

 

Everyone will not receive a questionnaire as they are sent out on a random selection basis.

 

These questionnaires are very important as they will help maintain the level of Parkinson's Services provided. So please do complete them if received.

 

Rachel Gardner (Lead Parkinson's Disease Nurse Specialist)

Dave Logan (Branch Chair)

 

Appointment Attendance - Please Help

We have been working really hard to reduce the number of people that don’t turn up to our appointments however it appears from our stats that we are not dropping this number very significantly.

 

Appointment letters are sent out for Parkinson’s Nurse appointments and home visits.

 

For the physio reviews, patients are sent a letter asking them to call in to confirm their appointment with our admin lady.

 

Rehabilitation Assistants usually call to book home visits and also to ensure that people are aware of the dates that they are attending Booster courses etc.

 

In this financial year we have had 92 slots left unused. This means that people have either not turned up to the appointment or have called in with less than 24 hours’ notice meaning that we are unable to get other people to attend instead of them.

 

I’m sure that you are aware that this can be very frustrating to us as professionals as we always run with a waiting list of patients that wish to see us and these people have to wait longer than is necessary.

 

We are aware that sometimes it cannot be helped but in many cases it can, so please could you contact us as soon as possible if you cannot or do not wish to attend so that we can reschedule the appointment for someone else.

 

With many thanks,

Rachel

 

Rachel Gardner

Lead Parkinson’s Disease Nurse Specialist

Swindon Parkinsons Service

 

Lion’s "Message in a Bottle"

A form which goes in the plastic tub kept in your fridge is available on their website  that you can fill in then print and save. Looks clearer to read than Parkinson’s shaky hand writing.

 

New video - Newly diagnosed with Parkinson's?

The Swindon & District Branch of Parkinson’s UK, supported by Swindonviewpoint, have made this film to let those newly diagnosed with Parkinson’s in the Swindon area know about the wide range of support available and to assure you that no one has to face Parkinson’s alone.

http://www.swindonviewpoint.com/video/recently-diagnosed-parkinsons

 

Updated Parkinson's Support Services

New information from SEQOL now appears under the "Parkinson's Services" section of this website.

 

Outpatient Welcome and Liaison Service (OWLS)

New service provided by Great Western Hospitals.

Please note that 3 days prior notice is required to book this service.  Details here

 

100 Plus Club Rules With Effect 1 June 2016

The 100 Plus Club rules have been revised to reflect the increased participation and will provide greater chances of winning. Details here

 

Walking Football

Les Fulcher

Meet Les Fulcher, Swindon & District Branch member and and one of the stars in our Walking Football group. In the short time that Tony Falkingham has been running this program it is totally amazing how quick and competitive it has become. As our coach Dan Martin says, football means a lot of time is spent on one foot and we are now seeing the players turning quick on the ball making use of the Tai Chi golden thread that goes through the head and down to your center core balance point. Pip Morris our Parkinson Services physiotherapist at the Swindon Intermediate Care Centre at GWH is delighted with the results and has told me it is making both sides of the brain communicate with each other. The skill levels and comprehensive along with the use of the Refs whistle has greatly increased.

 

A decision was made at yesterday's committee meeting to extend it by 30 minutes to allow a longer warm up period and longer rest times between the 15 minute games.

 

New times are Mondays at Grange Leisure from 12 - 1.30pm from Monday 18 April.

 

Why not come along and enjoy the fun of Walking Football for Parkinson's.

 

 

Message from Paul Mayhew-Archer

If you missed the My One Show Parkinson's Awareness Week feature, here it is....

 

 

Paul Mayhew-Archer Radio Interview and

Parkinson’s Awareness Week 2016

Paul Mayhew-Archer

Paul very kindly travelled to Swindon on Wednesday 23rd March to be interviewed on behalf of our Branch by Swindon 105.5. The interview which was with Shirley Ludford will be broadcast on Friday 25th March between 1pm and 2pm and on Sunday 27th March at 11am.

 

Paul also recorded an introduction for use during the Branch’s Parkinson’s Awareness Week activities (18-23 April) and extracts from the 23rd March interview will also be broadcast during that week along with other pre-recordings.

 

On behalf of the Branch, thank you Paul.

Dave Logan

Branch Chair 23rd March 2016

 

Taking Control - Powers of Attorney

Personal experience and advice by Ken Luxon

 

Supporting people with Parkinson’s

Metronomes presentation

On 16 February 2016 the Swindon & District Branch of Parkinson’s UK handed over five metronomes to Ashleigh Parker in the Woodlands Therapy Centre Gymnasium, SwICC at GWH.

 

The metronomes were purchased and donated by the Branch to help our Parkinson’s physiotherapists with their treatments in support of people with Parkinson’s who have walking difficulties.

 

The photo shows Dave Logan and Sandra Wanless handing over the metronomes to Ashleigh.

 

The Branch is pleased to be able to help and support both people with Parkinson’s and those who provide our medical care & treatments.

 

Dave Logan

Branch Chair

16 February 2016

 

Good News- an Early Christmas Present

We are pleased to announce that after successful interviews a job offer was made and accepted by Liz Tregoing for the post of our second Parkinson’s Disease Nurse Specialist (PDNS) who will join Rachel Gardner, Lead PDNS at GWH Swindon. Details here

 

Balance & Exercise Class Christmas Lunch 16 December 2015

Following the first Balance & Exercise class took place in the Stratton Suite at Grange Leisure, tables were quickly put up and laid for our joint class Christmas Lunch..... See the full report here

 

Minister for Disabled Branch Visit - 11 December 2015

The Swindon & District Branch met the Minister for Disabled, Justin Tomlinson MP, on Friday 11 December 2015. The meeting was arranged on Justin’s request through his Ministerial Office and was held at Grange Leisure, the Branch’s home ground, who kindly hosted the visit for us. Complete review of the visit here.

 

Robert helps Parkinson's UK bring forward the day no one fears Parkinson's

Tuesday, 8 December, 2015

On December 2nd South Swindon MP Robert Buckland joined up to the five-year mission of charity Parkinson’s UK - to bring forward the day when no one fears Parkinson’s.

 

In the run up to Christmas, Parkinson’s UK is highlighting the issues faced by people with Parkinson’s, a brain condition which can leave people struggling to walk, speak and sleep, and how things need to change.

 

Parkinson’s affects one in 500 people in the UK, and can cause a myriad of symptoms including insomnia, depression, and hallucinations, robbing people of their independence. But through more research, improved services, and empowering people with Parkinson’s to take control, their lives can be turned around.

Robert Buckland MP

 

Robert joined follow MPs at the charity’s parliamentary reception in Westminster to find out how they could get involved in Parkinson’s UK’s new approach to combating the condition.

 

Robert met Parkinson’s UK president and actress Jane Asher, as well as people affected by Parkinson’s including Paul McCourt, who has had Parkinson’s for five years and said he ‘crumbled’ when he first heard his diagnosis.

 

Parkinson’s UK wants to see quality services as standard for the 127,000 people like Paul with Parkinson’s in the UK. They also want people with Parkinson’s to feel empowered to take control of their lives, and to take part in clinical trials in their local area to help find better treatments and a cure in years not decades.

 

Robert said after attending the event:

 

“Attending Parkinson’s UK’s event, and hearing from people affected by the condition, really opened up my eyes to just how severely Parkinson’s can affect people in my constituency. But it also brought home how small changes, across the community, can have a huge impact. I’ll be doing everything I can to support their commendable mission.”

 

Parkinson’s UK Chief Executive Steve Ford said:

 

“It’s brilliant Robert Buckland MP has signed up to help us bring forward the day when no-one fears Parkinson’s. With their support, together we can turn around the lives of people with Parkinson’s. We look forward to seeing the difference Robert can make in South Swindon, and how he can help us to keep Parkinson’s on the political agenda.”

 

For advice, information and support, visit www.parkinsons.org.uk or call our free, confidential helpline on 0808 800 0303.

 

Florence Cole Receives Award at Autumn Concert

We were pleased to be able to honour Florence (Flo) Cole for her fundraising efforts to help improve the lives of people affected by Parkinson’s during our Autumn Concert.

 

Flo received her Honorary Life Membership Certificate from Emily Scotcher, Parkinson’s UK’s Regional Fundraiser South, at the Branch’s Autumn Concert on 2 November. The Concert was held at Blunsdon House Hotel and Emily stated that it was an absolute privilege to meet such a wonderful lady who was so inspirational and an example to us all. Flo also received a beautiful bouquet of flowers from PUK. Read Flo’s full story here